Community comes together to care for baby with rare birth defect
MILWAUKEE -- He was born with no eyes and is 100% deaf. But Calvin’s parents say he's their little superhero.
Sixteen month old Calvin Brezgel has a very rare genetic defect. It’s called SOX2 Anopthalmia
"Without hearing - and being blind, that's a lonely world sometimes, I guess," says his dad Dan Brezgel.
Doctors say Calvin is one of only 40 people in the world with symptoms this severe.
"A day for me starts off with Calvin getting his meds and making sure he's not sick, coughing, or choking," explains his mom Deborah Brezgel.
Calvin also has seizures, needs oxygen to help him breathe, and gets fed through a tube.
Dan and his wife are overwhelmed by the community support. Curly’s Waterfront Sports Bar is helping raise money for medical bills, which could be up to $100,000 a year.
They’re hoping to raise $5,000 for Calvin at Saturday’s fundraiser. Depending on its success, the manager of the bar is considering making it an annual event.
Calvin’s parents tell TODAY’S TMJ4 they're inspired by their son - how he's so small, but surviving the challenges.
“I wanted to name him Kal-El after Superman,” laughs Dan Brezgel. “Mom didn't want to go for that. So we settled on Calvin Clark Brezgel. I got the Clark out of it."
Calvin’s parents don't know if he'll ever walk or talk. They’re just taking it one day at a time.